“I think it’s really important to stay in communication with us, as human being to human being – because we are still human beings with a spirit. And it’s spirit to spirit that we can really stay in touch.”
“When I first started, there was no support for people with dementia, as it was assumed we lacked insight. Indeed the words of an Annual Report in 2000 of an Alzheimer’s Association spoke of us as being “mindless empty shells”. At first when I spoke up, people did not believe I had dementia because I could still speak. They said that even if I was showing the early signs, I was not a credible representative of people with dementia because of my level of function. Yet since then I have met so many others who have this diagnosis who are speaking out… We are receiving so much support and encouragement, and we are being listened to and respected. By treating us as experts in what it feels like to have a diagnosis of dementia, services and support are being much improved.”
“People with dementia continue to have decisions about them made by other people who bring to that decision their own views of safety and risk – these can be very profound decisions such as where someone will live in the future. It continues to be essential to develop services that respect the views of people living with dementia so that the care they receive is of high quality (and this is not necessarily care that is ‘risk free’).”
This month, we offered one of our readers a chance to preview a copy of the Revd Jewell’s latest JKP title, Spirituality and Personhood in Dementia, and ask him some questions about it: “Q: To what extent and how far has your exploration of dementia enhanced your understanding of spirituality? A: …People with dementia in the main live in the present moment because the past tends to get dismantled. To be able to live fully in the present, rather than be bugged by the past or worried about the future, is a great gift and one I covet…”
In this video series, Michael Mandelstam talks about his new book, How We Treat the Sick, which shows beyond question that neglectful care is a systemic blight,…
“From infancy to old age, the recall of personal memories serves to establish identity, safeguard self esteem, assist communication, enhance relationships, and preserve and transmit personal, family and community history. By valuing memories people are helped to value themselves when developmental challenges, current circumstances, transitions, failing health and increasing age assail us.”
” I find that older people are often patronised, and their ability to recover and make changes in their lives is often not acknowledged. Dr Martin Blanchard speaks in the Foreword of a ‘therapeutic nihilism’ that exists in attitudes towards the client group described in the book. One effect of this is that older people are often expected to fit into generic treatment systems, when they clearly have needs that will not be met by those systems. Thus the need for a specialist approach such as the book describes.”
Last week, JKP attended the 5th UK Dementia Congress in Bournemouth. As the largest dementia-focused annual event in the UK, the congress offered an exciting…
“Night staff have to provide the same level of person centred, individualised care as day staff. Their primary task is seen as the promotion of sleep. This can often mean that they feel compelled to get people back to bed as quickly as possible. Often, however, residents need, time, food, activity, and TLC as well as an opportunity to talk and discuss, particularly their fears and worries.”
Lucy Whitman – editor of the JKP book, Telling Tales About Dementia: Experiences of Caring – spoke at the third annual ‘Unfettering the Imagination’ dementia…