Book cover: Making Partnerships with Service Users and Advocacy Groups Work

‘Growing spaces’ as a way of understanding and developing genuine partnerships – An Interview with Jackie Martin and Julie Gosling

“I think that service users can give a perspective which can be lost without their inclusion. Service users can help to cut through some of the professional ‘jargon’ which excludes people, even other professionals sometimes. Professionals are often under considerable pressures to meet targets or stay within budgets, and even with the best will in the world they can start to lose sight of why they came into the profession in the first place. Service users can help to keep that perspective and keep values sharp.”

Living with Dementia: A journey to the inner self – An Interview with Christine Bryden

“When I first started, there was no support for people with dementia, as it was assumed we lacked insight. Indeed the words of an Annual Report in 2000 of an Alzheimer’s Association spoke of us as being “mindless empty shells”. At first when I spoke up, people did not believe I had dementia because I could still speak. They said that even if I was showing the early signs, I was not a credible representative of people with dementia because of my level of function. Yet since then I have met so many others who have this diagnosis who are speaking out… We are receiving so much support and encouragement, and we are being listened to and respected. By treating us as experts in what it feels like to have a diagnosis of dementia, services and support are being much improved.”

“Suicide is not a problem that can be tackled alone – but it can be tackled.” – An Interview with David Aldridge and Sergio Pérez Barrero

“What we offer is a model to show how problems escalate and how these problems are connected to relational contexts. We are encouraging people, particularly professionals, to communicate with each other and to look at the bigger picture. This is not a problem that can be tackled alone – but it can be tackled. To do so, we have to talk to each other. As professionals, we also need to collaborate more on combating mental health problems. This is an educational process, heightening awareness of how depression manifests itself but also removing the stigma of mental health.”

Compassionate care through touch – An interview with Niamh van Meines

“Touch is one of the most fundamental ways to offer support and caring and is often underestimated or disregarded in healthcare settings… A hand massage is a wonderful, easy introduction to using touch. From a caregiver’s perspective, they often feel disconnected from the person who is ill or weary of touching them, so it’s a wonderful way to approach the ill person and provide care in a manner that is satisfying to the ill person and to the caregiver, and safe.”

Touch as a way to share the radiant energy of care

“It was an exciting time, because it felt like a real movement in personal well-being was taking place. It wasn’t being led by doctors, but by ordinary people who were looking for more than symptom relief. They wanted therapies that were natural and non-toxic, and a way to be involved in the healing process. That was a key—becoming an active participant in wellness and illness instead of being a passive recipient of care. The quest for ways to be involved in the healing process, and for tangible ways to share it, became the continuing thread of my studies, writing and teaching.”

Risk Assessment and Management for Living Well with Dementia – An Interview with author Charlotte Clarke

“People with dementia continue to have decisions about them made by other people who bring to that decision their own views of safety and risk – these can be very profound decisions such as where someone will live in the future. It continues to be essential to develop services that respect the views of people living with dementia so that the care they receive is of high quality (and this is not necessarily care that is ‘risk free’).”

Reminiscence and Life Story Work – The Importance of Remembering Our Life’s Journey

“From infancy to old age, the recall of personal memories serves to establish identity, safeguard self esteem, assist communication, enhance relationships, and preserve and transmit personal, family and community history. By valuing memories people are helped to value themselves when developmental challenges, current circumstances, transitions, failing health and increasing age assail us.”

Counselling Older People with Alcohol Problems – An Interview with JKP authors Mike Fox and Lesley Wilson

” I find that older people are often patronised, and their ability to recover and make changes in their lives is often not acknowledged. Dr Martin Blanchard speaks in the Foreword of a ‘therapeutic nihilism’ that exists in attitudes towards the client group described in the book. One effect of this is that older people are often expected to fit into generic treatment systems, when they clearly have needs that will not be met by those systems. Thus the need for a specialist approach such as the book describes.”