LGBT people affected by dementia – Roger’s story of care and caring
Roger Newman, MBE shares his experiences of caring for a partner with dementia, and how this led him to set up the first LGBT Dementia…
Roger Newman, MBE shares his experiences of caring for a partner with dementia, and how this led him to set up the first LGBT Dementia…
Last month, JKP Commissioning Editor Steve Jones and I packed our bags, books and banners and headed to the beautiful main campus of Queen’s University…
By Ian Stuart-Hamilton, Professor of Developmental Psychology and Faculty Head of Research at University of Glamorgan, Wales, and author of The Psychology of Ageing, now in its…
“This is the first time that dementia is a political priority, creating drivers for focusing on all aspects of dementia, from the anti-dementia drugs, to an increased knowledge about potential risk factors and preventions strategies as well as innovative ways to provide high quality support and care.”
“The news that a parent has a terminal illness generally presents the family with a huge crisis. Everything about family life is catapulted into a maelstrom, routines change and nothing appears to be predictable anymore. If children are not included in conversations about their parent’s illness and possible imminent death they are going to witness all the changes without having any ‘concrete’ knowledge to use as a marker. They will be aware of the changes and know that something is very different but will not be able to form a consistent narrative. As a result they are in danger of piecing together the information they have gleaned and making erroneous conclusions.”
“The problem with self-harm and suicidal behaviour is that it is easily hidden, carries considerable stigma and is misunderstood by many professional staff. Evidence suggests that it is increasing as a generation of young people are exposed to a harsh economic and social climate, competition for higher education and skills training, and increases in poverty, unemployment and parents under considerable stress. Young people find ways of coping in these circumstances and self-harm is a strategy many are using to cope with feelings of anger, despair and hopelessness.”
“Person-centred thinking and planning helps people think about all the resources available to them, and then helps them and the people who support them use those resources to their full effect. It makes every penny of funds they receive – either from public or private sources – stretch so much further. When money is tight, it is even more important to use resources as effectively as possible. And what better resource is there than what a person (or those close to them) believes is important to them and works well for them and what they want for their lives? We can’t afford not to listen to people well and to act on this information.”
“Touch is one of the most fundamental ways to offer support and caring and is often underestimated or disregarded in healthcare settings… A hand massage is a wonderful, easy introduction to using touch. From a caregiver’s perspective, they often feel disconnected from the person who is ill or weary of touching them, so it’s a wonderful way to approach the ill person and provide care in a manner that is satisfying to the ill person and to the caregiver, and safe.”
“It was an exciting time, because it felt like a real movement in personal well-being was taking place. It wasn’t being led by doctors, but by ordinary people who were looking for more than symptom relief. They wanted therapies that were natural and non-toxic, and a way to be involved in the healing process. That was a key—becoming an active participant in wellness and illness instead of being a passive recipient of care. The quest for ways to be involved in the healing process, and for tangible ways to share it, became the continuing thread of my studies, writing and teaching.”
Anthony Peake is a renowned writer and researcher whose work focuses on the nature of consciousness and reality, and mysterious phenomena such as déjà vu.…